Showing posts with label Mirena IUD. Show all posts
Showing posts with label Mirena IUD. Show all posts

Monday, January 5, 2009

IUD is OUT

No, this is not the book review I mentioned in my last post. It will come in the near future, I promise.

But I do have some news. I got my Mirena IUD removed today! See this post for background information.

My gyno didn't try to talk me out of it, and she was pretty nonchalant about the whole thing for which I'm grateful. I thought it would be painful so I took two Aleves about an hour before - I already had some cramps and a headache - but I don't know if they made a difference. They sure didn't help my headache! Anyway, there was a second of intense pain when she pulled it out (felt like really bad cramps but as a sharp pain) and that was it. I wasn't even sore afterward.

She said I'll get my normal period back in about a month, and then I'll be able to get my hormones tested. Then maybe I'll find out if they're related to my headaches.

Wednesday, December 10, 2008

Headaches and Hormones

I visited my neurologist this week and I have a few things to discuss. Warning - hormonal discussion ahead, with all the gory details.


Earlier I wrote how I plan to visit a new neurologist who specializes in hormonal headaches. I brought it up to my neurologist, and he seemed familiar with her and said that she would probably put me on estrogen, which I've tried before. However, I still want to see her, so, my neurologist is filling out a referral for me and then the new place has to evaluate my files and decide whether or not they'll accept me. Yep, apparently I have to be accepted. With all the people who suffer from headaches/migraines (I think I read the other day it's 20% of women), I'm sure they get a lot of requests. I'll post on my blog as soon as I get accepted (might as well think positively).

Hormonal Issues and My IUD
I told my neurologist that I've been spotting and cramping still (sometimes one or the other, sometimes both, at all different times throughout the month). If you don't follow my blog, I should mention that I have an intrauterine device - IUD - Mirena - because I felt that the Pill gave me migraines. I've tried the Patch also, and the Pill for months straight and had breakthrough bleeding. Fun stuff. So anyway, my neuro asked me if I had breast tenderness (yes) and cysts (I think so) which the IUD can cause. He thinks I should get the IUD out next month when I visit my gyno. Btw, dummy me didn't check to see if the IUD was covered in my insurance two years ago, and the Mirena plus insertion cost about $1,000. One. Thousand. Bucks. And it's supposed to last five years. That would have pretty much been the cost of the Pill for five years, so that made it a little better. But after two years??? And removal costs $175.

My husband does NOT want me to get it out, because of money. I hate to go against him, but it's my body, and I don't like what's happening with it.

Hormonal Tests
One reason my neuro wants it out, aside from the reasons above, is so I can have a normal period and get my hormones tested. A few visits ago I asked him about getting my hormones tested and he said it wouldn't help, but that's because he thought my headaches were from muscle tension and I think now he realizes it's hormones, because all the anxiety meds and muscle relaxers didn't help.

Quasi-scientific Stuff
I will attempt to explain why my neuro wants my IUD out and hormones checked. The Mirena IUD has the hormone levonorgestrel, which is synthetic progesterone, a natural female hormone. Levonorgestrel acts like progesterone in the female parts and the brain for most women, but for some, like me, it doesn't fit the receptors. My neuro thinks that I need the progesterone because he suspects my levels are low and that is why I started my period somewhat late (age 15) and had heavy periods and cramping. My mom went through the same thing (she does not have headaches, but my dad gets migraines, with his fibromyalgia) so I thought nothing of it. If I do have some form of a progesterone deficiency, the hormone tests would reflect it and I could then take pills to fix it, and PERHAPS, my headaches would then go away.

Just the thought of there finally being a cause of my headaches is extremely exciting to me, and I want to yank the IUD out (ouch, not really) and get the tests done immediately! But, I have to wait for a normal period first.

Other Updates
Btw - I get to stop Abilify, thank the Lord. And I mean that. It was awful.

My neuro also recommended a book, Natural Hormone Balance for Women, by Uzzi Reiss, M.D./O.B. GYN. Yes, that's seven letters after his name! I checked it out from the library today and will do a book review post when I'm done.

Thanks for reading! As always, feel free to comment to share your experiences, thoughts, or opinions!

Monday, November 10, 2008

Echocardiogram results; Bystolic Q&A

Drum roll, please....

No hole in my heart! Woohoo. I was ready to have heart surgery too. Of course, I would have ruled out other things first. Anyway, if you have no idea what I'm talking about, see my last post. I encourage everyone who has headaches/migraines to get the test done though, assuming your insurance covers it, because ya never know...

So moving on to other things, this health Web site called Wellsphere publishes my blog (among other blogs) and they have a Q&A section, so I decided to ask a question. Here's the link, and here's the Q&A:

Q:

Is anyone else on Bystolic (nebivolol) for headaches/migraines?

I've been on it (5 mg/day) for at least six months, and while my migraines have gone away for the most part, I still have about 10-15 headaches a month. My neurologist thinks it's helping my migraines, but I'm not sure if it's that or something else. I didn't have many migraines that often to begin with.

If you're on it or have tried it, please weigh in. Is it helping? Did you have any side effects? (I haven't noticed any except for a slower heart rate). I'm nervous about being on such a new medication when I don't even think it's helping.

Thanks!

-Heather

A:

Heather,

Bystolic is a beta blocker, and beta blockers are quite effective Migraine preventive medications for many people. However, after five months, it's working as well as it's going to unless you increase your dosage. If you're worried about Bystolic because it's new, there are many older beta blockers you could try, including propranolol/Inderal (Note from Heather - I've tried these; bad side effects)

You are definitely still having too many Migraines. Research is increasingly showing that Migraine is a progressive neruological disease that can cause brain damage in some patients. Those who have three or more Migraines a month are at more risk for such damage than people who have fewer than three Migraines a month.

For more information, see Is Migraine a Progressive Brain Disease? and Yes, Migraines Can Cause Brain Damage.

Don't just settle. It's far too important. If your doctor won't work with you to find better treatment, it's time for a new doctor.

Good luck,

Teri

(Back to Heather:)

Now, Teri isn't a doctor, but she seems to have a lot of knowledge when it comes to headaches and migraines. Check out her blog here.

Speaking of migraines, I had my first one in a while (I mostly get headaches) on Friday. I'm nervous that since I've had my IUD for two years, my body is getting used to it and I'm going to have migraines like I did when my body got used to The Pill. I hope I'm wrong, but we'll see.

To wrap up this post, I'd like to thank God for the good test results today!

Saturday, August 23, 2008

Is Bystolic helping my migraines?

Someone commented the other day on an old post I made when I first started taking Bystolic, asking if it is making a difference in my migraines. I decided to include my answer in this post so it has more visibility.

Short answer: it's complicated.

My neurologist is convinced that the Bystolic is preventing migraines. While I haven't had full-blown migraine in a while, I still have nausea and light sensitivity with some headaches. And of course, I get about 15 headaches a month, so those could be considered mini-migraines.

Other factors could tie in - I had migraines when I was on birth control pills, now I have an IUD (Mirena). I haven't been spotting as bad from it (I've had it about 2 years and had bad spotting the first year and a half). When I was on the pill though, I was in college and had an awful sleep schedule, so that could have caused my migraines - or maybe it was a combination of that and The Pill.

I just looked at my headache calendar and my last migraine was in July; before that, March, when I started the Bystolic. And before that, I had them about once or twice a month.

So maybe Bystolic is helping. I haven't had any noticeable side effects, so I don't mind taking it just to be safe!
_ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _

Quick update on the Naproxen - it's starting to upset my stomach, but I was able to get some Nexium samples, which I take once a day. I still have an upset stomach but it's not too bad.

Also, my final physical therapy appointment was last week. The therapist suggested that I take a heating pad to work for my neck/shoulders, so I did that during the week and it seemed to help. The headaches that I've had last week would come and go and never really stuck, which is awesome. She also said to do yoga. I have a yoga video, but I haven't done it recently; I did work out on the treadmill last week but that's about it. I need to make time for workouts, because exercise seems to improve my mood in additon to helping the headaches.

Friday, April 11, 2008

Neurology Appointment Update

At my neurology appointment earlier this week I asked my neurologist about the seizure medication I mentioned in my last post, but although he seemed to be willing to have me try it last time, this time he said it wouldn't work for me because I'm getting tension-like headaches and not migraines (I could argue that the Fioricet stopped the migraines, but I don't argue with doctors...or anyone for that matter, except my husband). He thinks that since I haven't had a migraine in about a month, the Bystolic must be working. Speaking of Bystolic, a few posts down is a very encouraging comment from someone who is taking the drug, and - get this - it's WORKING! It's good to hear that actually happens - seriously!

Also at the appointment I asked my neuro about the glucose test and he said it wouldn't show anything and that everyone gets headaches when they eat too much sugar. I also showed him a printout about Sinol and he said he hadn't heard of it but he had heard of capsaicin, an ingredient which I believe is derived from hot peppers and is clinically proven to help headaches. He seemed very interested in hearing if it works for me. CVS no longer carries it, and I couldn't find it at Rite Aid or Whole Foods either, so I e-mailed the source to find out where I can find it. I'll probably have to order it online. They revamped their Web site; check it out if you're interested: click here.

My neuro put me BACK on 75 mg of Lyrica because he thinks it worked for me at one point, which I don't remember, but I don't remember any bad side effects either, so I'm willing to try it. However, I quickly discovered a side effect the last two days - drowsiness. I take it at night but it still makes me drowsy in the morning; in fact, I turned off my alarm in my sleep and was really late for work yesterday and today. I'll have to set a second alarm Monday. Thank goodness I have a nice boss!

Meds I'm currently taking: 10 mg Lexapro, 10 mg Bystolic, 75 mg Lyrica, plus my Mirena IUD and a daily multivitamin, and Butalbital (Fioricet), Aleve or Exedrin Migraine when I get headaches.

Saturday, January 12, 2008

Hormones, birth control, headaches and doctors/specialists

I asked my new gyno about getting my hormones checked, and she said that would show nothing to help my headaches - it would only show when I'm ovulating. She did say that my spotting from the IUD would go away in a few months, and my neuro says if I can stop the spotting I'll have fewer headaches, so we'll see. I'll believe it when I see it (or DON'T see it...yuck...sorry)!

If you want to know a good birth control for headache-sufferers, my gyno recommended the Nuva Ring. My friend tried one and hated it, but I'm sure it depends on the person. I've tried various kinds of birth control pills, the patch (Ortho Evra) and the IUD that I have now. According to my gyno, the patch is about the worst thing you could try if you have headaches. She says if I really want to get rid of my headaches I should get pregnant - that worked for her. No thanks. :) I love kids, but I'd rather have control of my headaches first, then try to have kids (not sure if that would work though because I'd probably have to stop my medications before trying to have kids). I have LOTS to look forward to.

My gyno's husband works at a big neurology place in town, so she was asking if I tried that place. I said yes and left it at that (I don't think I had the best neuro there...he was more of a trial and error doctor - he tried medication after medication on me - and he didn't seem to care about ME and how I was handling everything like the neuro I have now does.) Anyway, our conversation went like this:

Gyno: Why aren't you on something to prevent headaches?
Me: I am - that's what the depression medicine is supposed to do.
Gyno: LEXAPRO??? Well have you tried Topamax?
Me: Yes, it didn't work and I lost too much weight.
Gyno: Any beta-blockers?
Me: Yes didn't work.
Gyno: Nor...
Me: ...triptyline...yes...and amitriptyline, too - it made me faint
Gyno: What about a calcium channel blocker?
(ME: I said I wasn't sure, but I just looked it up and I've tried Verapamil)
Gyno: Chiropractor or acupunture?
Me: Chiro, yes; acupuncture, not until insurance covers more of it!

I need to keep the same doctors so I don't have to go through that every time. :) I'm glad she cared though - maybe next year when I see her she'll know of something else I can try.

Thanks to all the doctors out there who take time to check out the physical and mental well-beings of their patients.

Thursday, January 3, 2008

So many doctors!!!

Happy New Year!

Next week I see my neurologist and a new gynocologist. I hate to disappoint my neuro, but the Lexapro isn't working anymore. I'm very disappointed yet somewhat relieved because they cost $100 a month (60 pills total, 2/day); without insurance is about $180 for 60 pills, but I'm not going to get into my abscent-mindedness and why I know that.

I'm going to ask my new gyno if I can get my hormone levels checked. A friend from church keeps telling me I should do this because her sister-in-law has hormone-related headaches. I guess it couldn't hurt, but I don't know how my Mirena IUD will affect the results.

Speaking of the Mirena, I also have an upcoming appointment with a dermatologist (whom I've seen once before) for my breakouts...either caused by the Mirena or by the fact that I'm not on birth control pills anymore.

Last but not least, I have a dental appointment coming up as well. The girl who cleans my teeth has migraines, so we always compare medications we're on - last I checked she was on Topomax and it made her lose her appetite and didn't work too well (I had the same results when I tried Topomax).

Please comment if you're female and have had your hormone levels checked...I'm interested to see how that works and if it might help me figure out why I get headaches. Thanks!!

Thursday, October 18, 2007

Headaches Not Over Yet

It seems the serotonin-increasing Lexapro may not be helping after all. Since my last post, I've had 4 headache days - 3 were in a row. This is probably getting too personal, but my Mirena IUD has been acting up because I've been spotting for a month now. I'm actually surprised my headaches aren't much worse. I have killer cramps right now (but I'm not taking meds for them because if I take Aleve too much, it won't help me when I have headaches and I'll have to go with my stronger prescription of Butalbital).

I'm supposed to see my gyno next month, which would make it a year since the IUD was inserted. I do NOT want it out because I don't want kids right now, and I had to pay for it in full which was more than $1000 (if I didn't mention this before, the insurance I was on at the time did not cover IUDs, a form of birth control, but they covered "pregnancy terminations" - that was the most pissed off I'd been in my life when I found that out, and not because of the money), and they last 5 years. I'm planning on keeping it at least 4...but I've got to do something about the spotting. Ugh.

Meanwhile, the Tri-Core pillow seems to be working. It took a while adjusting to it, and I actually lost a lot of sleep from it, but I'm finally used to it and haven't been having neck pain.

On a non-headache note, I had a work "meeting" today and I was told to wear short sleeves. Turns out we had an office pumpkin-carving party. It was awesome! I saved the seeds to bake - yummy. I'll try to post pictures here later.

Hope everyone has a headache-free Friday and weekend!