Showing posts with label Topamax. Show all posts
Showing posts with label Topamax. Show all posts

Thursday, March 18, 2010

My Weapon for Nausea

Nausea hasn't been a big problem for me lately, probably because my headaches are more daily headaches and not so much migraines (and by that I mean the intensity is not a 7 to 10 on a 10 scale and I don't have nausea and throbbing). This could be due to the Zonegran, the TMJ mouth guard which I got last week and now wear 24/7 except for eating, or my migraine trigger food elimination diet. I hope it's not the Zonegran that's helping because it's similar to Topamax, and I'm having similar side effects - loss of appetite, word loss, trouble concentrating, hair loss...but this could be because I'm on the generic.

But back to the nausea. I know that many migraine sufferers do have nausea, so I wanted to share something that worked wonders for me when I had nausea.

Drumroll, please....


Newman's Own Ginger Mints. Yes, they're organic! Meaning no artificial sweeteners, which can trigger migraines. I buy them at the health food section of my local Kroger, but I found them online here.

I'm not promising this will work for you. My nausea may not be as bad as yours. I've only thrown up once from a migraine, but I don't throw up much in general. Even with flu, I get symptoms on the other end, if you know what I mean. TMI, sorry. However, with migraines, I would get nausea in waves so bad that I'd have to stop what I was doing to concentrate on not throwing up, and when I took this it would help a lot. Hope it works for you too! :)

No, Newman's Own is not sending me free stuff, and I've never actually ordered through vitacost.com.

Thursday, February 7, 2008

M&M: Massage and Migraines

An article in the Sacramento Bee discusses the benefits massage can have on migraines. Click here to read the full article.

Since professional massage is expensive, the article lists three things you can do at home:

Hand reflexology: By pinching your fingers together, apply pressure to the web between your pointer finger and thumb and work the tenderness out for three to five minutes on each hand. This should take down the headache a few notches. Feel around this area for little curves under the skin, indicators of dehydration.

Foot reflexology: Sit down and put your bare foot on a tennis ball. Apply pressure while moving your foot around on the ball. Focus for 10 to 15 seconds on sore spots, then switch feet.

Light traction on the spine: Consult a professional to learn how to do this properly, then ask a family member or friend to try this method on you. Lying on your back, have them place a soft rolled terrycloth towel on the base of your skull before applying gentle traction from the C7 vertebra (the most protruding vertebra in the neck) up to the skull. Use 30-second traction intervals for five minutes total.

My comments:

Hand reflexology - lots of people, including my former chiropractor, shared this technique with me. Unfortunately, it hasn't worked for me, but maybe it works for some people.

Foot reflexology - can anyone say "Charlie horse?" That would most definitely give me a Charlie horse which would be worse than my headache.

Spine traction - my chiropractor tried this on me; didn't work.

Something that MIGHT work, though, is a head massage. I went to get my hair cut at a new place last weekend and the stylist massaged my entire scalp during and even a few minutes after washing my hair (and I was also in a massage chair). It felt so good and I think that would work on a tension headache. I'm either going to have to get frequent hair cuts or teach my hubby to do this.

On a different note, I went to my dentist yesterday and the girl who cleans my teeth (who is in her 20s like me) gets migraines so we always update each other on our progress (or lack thereof). She had been taking Topamax but it didn't work all the time and made her lose her appetite. Yesterday she told me a new side effect it had on her - kidney stones! She said they were more painful than the migraines, and her neurologist wanted to up her dose of the Topamax. Thank goodness she said no, and she stopped taking the Topamax. Now she is not taking anything, but she still had migraines with the Topamax so not much has changed. That's pretty scary; I think she was on the Topamax for only a few years.

Saturday, January 12, 2008

Hormones, birth control, headaches and doctors/specialists

I asked my new gyno about getting my hormones checked, and she said that would show nothing to help my headaches - it would only show when I'm ovulating. She did say that my spotting from the IUD would go away in a few months, and my neuro says if I can stop the spotting I'll have fewer headaches, so we'll see. I'll believe it when I see it (or DON'T see it...yuck...sorry)!

If you want to know a good birth control for headache-sufferers, my gyno recommended the Nuva Ring. My friend tried one and hated it, but I'm sure it depends on the person. I've tried various kinds of birth control pills, the patch (Ortho Evra) and the IUD that I have now. According to my gyno, the patch is about the worst thing you could try if you have headaches. She says if I really want to get rid of my headaches I should get pregnant - that worked for her. No thanks. :) I love kids, but I'd rather have control of my headaches first, then try to have kids (not sure if that would work though because I'd probably have to stop my medications before trying to have kids). I have LOTS to look forward to.

My gyno's husband works at a big neurology place in town, so she was asking if I tried that place. I said yes and left it at that (I don't think I had the best neuro there...he was more of a trial and error doctor - he tried medication after medication on me - and he didn't seem to care about ME and how I was handling everything like the neuro I have now does.) Anyway, our conversation went like this:

Gyno: Why aren't you on something to prevent headaches?
Me: I am - that's what the depression medicine is supposed to do.
Gyno: LEXAPRO??? Well have you tried Topamax?
Me: Yes, it didn't work and I lost too much weight.
Gyno: Any beta-blockers?
Me: Yes didn't work.
Gyno: Nor...
Me: ...triptyline...yes...and amitriptyline, too - it made me faint
Gyno: What about a calcium channel blocker?
(ME: I said I wasn't sure, but I just looked it up and I've tried Verapamil)
Gyno: Chiropractor or acupunture?
Me: Chiro, yes; acupuncture, not until insurance covers more of it!

I need to keep the same doctors so I don't have to go through that every time. :) I'm glad she cared though - maybe next year when I see her she'll know of something else I can try.

Thanks to all the doctors out there who take time to check out the physical and mental well-beings of their patients.

Thursday, January 3, 2008

So many doctors!!!

Happy New Year!

Next week I see my neurologist and a new gynocologist. I hate to disappoint my neuro, but the Lexapro isn't working anymore. I'm very disappointed yet somewhat relieved because they cost $100 a month (60 pills total, 2/day); without insurance is about $180 for 60 pills, but I'm not going to get into my abscent-mindedness and why I know that.

I'm going to ask my new gyno if I can get my hormone levels checked. A friend from church keeps telling me I should do this because her sister-in-law has hormone-related headaches. I guess it couldn't hurt, but I don't know how my Mirena IUD will affect the results.

Speaking of the Mirena, I also have an upcoming appointment with a dermatologist (whom I've seen once before) for my breakouts...either caused by the Mirena or by the fact that I'm not on birth control pills anymore.

Last but not least, I have a dental appointment coming up as well. The girl who cleans my teeth has migraines, so we always compare medications we're on - last I checked she was on Topomax and it made her lose her appetite and didn't work too well (I had the same results when I tried Topomax).

Please comment if you're female and have had your hormone levels checked...I'm interested to see how that works and if it might help me figure out why I get headaches. Thanks!!

Sunday, November 4, 2007

The Migraine Diet - NY Times Blog Post & Comments

I don't think I've heard of Judith Warner, but she appears to have a blog on the New York Times Web site called "Domestic Disturbances." In a post October 25 called The Migraine Diet she talks about her struggle with migraines. It's an interesting post, but what really peaked my interest was the comments section. I started reading people's comments and realized that the blog had a total of 572 comments, and the only reason there aren't more is they had to no longer accept comments, probably because there were so many. I haven't read them all, but when I have time, I will. Here are some samples:

I’m a huge fan of your column and also a cronic migraine sufferer. I encourage you to try Topamax. Years ago my worst migraines were put under total control by “calcium channel blockers” (Cardizem). I was migraine free and drug free for about 13 years. But migraines tend to come back and mine did. This time, calcium channel blockers didn’t do the trick but Topamax did. You start on a higher dosis and then you slowly reduce. I was scared when I heard the word “antiseizure” medication. I thought to myself, “I don’t have epilepsy…” But it’s been just a miraculous drug. Good luck. Only someone who’s felt the loss of control that suffering from migraines represents can truly understand you. Be healthy!
— Posted by Nancy Lisker

Wow, you just wrote the story of my own migraine-afflicted life. We migraineurs are the only ones who believe it’s really like that, which skepticism can be added to the list of burdens. But what I’m actually writing to tell you is this: Don’t go near the topomax! You could easily end up twitchy-faced, crawly-skinned, blurry-visioned, and dull-witted — and not necessarily migraine free. For that kind of outcome, I’d opt for the Peanut M&Ms every time. Happy Halloween!
— Posted by Janie Stoehr

(Note from Header - It's sadly kinda funny how different people are in their reactions to medications. FYI - I've tried Topomax...didn't work.)

My condolences. Good luck. My sister had migraines starting in college. Infrequent, then frequent, then crippling. After a million doctors who helped almost not at all, one finally gave her a list of things to try not eating. Turns out wheat was one of her major triggers. Ordinary, ubiquitous wheat. No wheat, no migraines. Instant cure for her. A few years later I started having my own odd sensitivities, and again wheat was a culprit, along with soybeans for me.
So on the one hand, after Halloween, you might try un-exploring a wider range of foods, perhaps including (excluding?) wheat. On the other hand, you might look around your family tree to see if there are any interesting food or other sensitivities, and try experimenting with avoiding those things.
Condolences also for having such a snarky neurologist. Some try to help their patients in every way possible; some prefer to paint themselves into narrow little mindsets.
— Posted by Ken_K

(Note from Header - I've seen four different neurologists...keep searching until you find a good one who doesn't just shove drugs down your throat. It's fine to try different medications, but make sure the neuro cares about you, warns you of possible side effects and frequently schedules checkups to make sure your body is functioning!)

Check out the blog link for the post and tons of comments!