Thursday, April 24, 2008

Nasal Sprays

So, I haven't been using Sinol very long and right now I have a cold so when I do use it, I can't even feel the sting, but...I'm going to go ahead and jump to the conclusion that nasal sprays aren't going to help my headaches. Maybe I should try a different one like the one suggested by a reader (see comment in previous post), but I think that my headaches are from hormones or something internal that nasal spray won't impact.

I hope I'm wrong. In the meantime, I'm going to keep using the Sinol and keep trying other new things I come across as well.

And of course, I'll note everything on here.

Sometimes I wonder, what if there's some crazy cure for headaches that nobody knows about because it's so random? Like if you stand on your head for 10 minutes each day, you won't get headaches. Or eating dirt can cure a headache. I'd try it!

Tuesday, April 15, 2008



I finally found Sinol, with the help of a Sinol rep. He said that CVS does in fact carry Sinol, but it is not in the nasal spray section; it is in the headache/pain med section on the bottom shelf. With a $3 off ExtraCare Card coupon, I ended up paying about $12. I tried it about 3-4 times yesterday, and boy did it sting! It was not bad though, mainly like the sensation you get when you need to sneeze. It didn't help my headache, but the directions say to use it when your headache starts and unfortunately mine started at work before I had the chance to purchase the Sinol. My neuro said I may need to use it regularly before I see results, so I'm keeping this stuff with me at all times!

My husband thought I was dumb for trying something just because someone mentioned it on my blog, but I reminded him that I spoke with my neurologist first, and I told him that it's natural and made from peppers, and he said "oh" and gave me that "fine you're right" look. Haha.

Friday, April 11, 2008

Neurology Appointment Update

At my neurology appointment earlier this week I asked my neurologist about the seizure medication I mentioned in my last post, but although he seemed to be willing to have me try it last time, this time he said it wouldn't work for me because I'm getting tension-like headaches and not migraines (I could argue that the Fioricet stopped the migraines, but I don't argue with doctors...or anyone for that matter, except my husband). He thinks that since I haven't had a migraine in about a month, the Bystolic must be working. Speaking of Bystolic, a few posts down is a very encouraging comment from someone who is taking the drug, and - get this - it's WORKING! It's good to hear that actually happens - seriously!

Also at the appointment I asked my neuro about the glucose test and he said it wouldn't show anything and that everyone gets headaches when they eat too much sugar. I also showed him a printout about Sinol and he said he hadn't heard of it but he had heard of capsaicin, an ingredient which I believe is derived from hot peppers and is clinically proven to help headaches. He seemed very interested in hearing if it works for me. CVS no longer carries it, and I couldn't find it at Rite Aid or Whole Foods either, so I e-mailed the source to find out where I can find it. I'll probably have to order it online. They revamped their Web site; check it out if you're interested: click here.

My neuro put me BACK on 75 mg of Lyrica because he thinks it worked for me at one point, which I don't remember, but I don't remember any bad side effects either, so I'm willing to try it. However, I quickly discovered a side effect the last two days - drowsiness. I take it at night but it still makes me drowsy in the morning; in fact, I turned off my alarm in my sleep and was really late for work yesterday and today. I'll have to set a second alarm Monday. Thank goodness I have a nice boss!

Meds I'm currently taking: 10 mg Lexapro, 10 mg Bystolic, 75 mg Lyrica, plus my Mirena IUD and a daily multivitamin, and Butalbital (Fioricet), Aleve or Exedrin Migraine when I get headaches.

Sunday, April 6, 2008

Nightmare side effects

Now that the Bystolic I'm taking has had a few weeks to sink into my body, I've noticed an interesting side effect - nightmares. I've tried other meds that caused realistic or wild dreams, but these nighmares are pretty intense. And by intense, I mean VIOLENT. I won't go into detail but I'm glad I'm getting off the stuff.

At least this side effect wasn't really in "real" life. It could have been much worse, and that's not why I'm getting off it. Unfortunately, it hasn't helped my headaches a bit. They've been awful and very persistent lately.

Tomorrow I have a neurology appointment, and I'm almost certain my neuro will take me off Bystolic. I'm going to ask to try Zonisamide, or Zonegran, which is a medication for seizures that my nurse sister recommended, and when I brought it up to my neuro last time, he said he was considering that one.

I really wish insurance would cover more than just drugs so I could try acupuncture or something different. I'll ask my neuro about Sinol tomorrow also. I have a list of the ingredients printed out. CVS no longer carries the nasal spray but the Sinol people said that Rite Aid does. I hope I can at least give it a try.

I'll post an update on my appointment sometime this week.

Although my headaches are a part of me and it seems like they will never go away, I'm STILL fighting this war, and I WILL get rid of them some day (even if I have to wait until heaven- they WILL be gone)!