Hydration

My long weekend migraine finally went away completely on Monday - in fact, I didn't even have a headache! It was terrific. So was Tuesday. By Wednesday, I started to get a slight headache and today I feel the pain again, boo. At least it's not a migraine so far.

So did dog sitting last week help my head? As much as I enjoyed having my "nephew" around, the answer is no. To his defense, he had been to the groomers a few weeks before he came here and he still had a strong perfumey smell on his fur, so I took him outside and hosed him off (which he hated). Unfortunately, that only helped a little. Maybe that's why I still had headaches/migraines even though I was taking him for long walks/runs almost daily. Then again, it probably takes longer than a week and a half of regular exercise to see an improvement in your health. Either way, I still want a dog.

Speaking of exercise, I've been keeping it up as much as my head will allow. My body's been really sore from the running, which is probably normal and I've made sure to stretch so I know that's not the reason. I think I just need to get used to it. Another thing I've added to my headache arsenal is Gatorade.

Lemon-lime deliciousness

My mom read somewhere that hydration is important but that drinking only water may not be enough because our bodies need electrolytes. She said I should try Gatorade, so I went to Costco and found a big container of the powder kind so I can make my own and avoid the BPA in the bottles. I realize that I'm adding fake flavoring, fake coloring and more sugar (from what I can tell, the sugar is real) to my diet, but if it helps my head it will be worth it. I'm drinking one to two glasses daily - all at once, not sipping throughout the day, because I like the enamel on my teeth, thank you. I'll try it until I go through the entire container, and I'll let you know if it works!

Giveaway: my blogger friend Steph at Head Wise is doing a giveaway (a care package). So far, I'm the only one who has entered and that doesn't seem fair, so please go leave a comment to enter - the deadline is tomorrow! By the way, the giveaway is thanks to another blogger friend, Jessica at Painfully Speaking. These gals ROCK!

Headache vs. Migraine

My migraines have been bad lately. Migraines, not headaches (although headaches have been bad too). I had to switch my work days last week and today I didn't make it into work until 11 a.m. Luckily I only work 20 hours a week. If you have migraines, you know what they're like. They get in the way of life. But for those of you who read or stumbled upon this blog who have never had one, I thought I'd share a taste of how they differ from typical headaches, in timeline format based on my current migraine.

 Photo credits: Tibo (headache car); Icarus Kuwait (migraine car)

My nearly every-day headache: I start to feel head pain. I begin to assess the pain and decide whether or not I should take drugs.
My current migraine: Yesterday I have general headache pain and take GelStat earlier in the evening (I ordered a bunch of this online to give it another try). Last night I'm watching TV. I get up from the couch and my head goes BOOM BOOM. I say, "oh SHIT." I've been good about cursing lately, so this is a bad sign. I make some ginger tea to help my nausea, put an ice bag on my head, and then decide to try and sleep it off. I wonder what could have triggered it - storms, running, yoga, chewing tough steak, hormone issues from the cramping I've been having, a combination...

Headache: I sleep like a log.
Migraine: I wake up on and off due to the pain, sometimes moaning. The pain pulses with my heartbeat. Every time my husband moves in bed, even slightly, my head throbs. My soft pillow hurts.

Headache: I take 2 Aleve and go about my day.
Migraine: I wake up early and get some applesauce so I can take meds. It's an unopened jar and normally I'm a machine when it comes to opening jars, but when I strain my head throbs so I wait for my husband to get out of the shower so he can open it for me. I try eating a rice cake in the meantime but the chewing motion hurts my head too bad. I take 2 Butalbital, wait for it to kick in (which means the dizziness begins), take a a quick nap, and start getting ready for work. I make appointments for next week with my gyno and neuro (shocking that she could get me in so soon) because this is getting ridiculous. Then I tell my boss I'll be late. I'm lucky - he's always been understanding about my health.

Headache: Generally the Aleve works. If not I'll suffer through work and nap when I get home.
Migraine: My head starts to throb again every time I get up at work so I have to take 2 more Butalbital and drink a cup of caffeinated coffee. I have a meeting with my boss and stumble through the agenda, pausing and using the wrong words a lot - gotta love migraine brain. I work until the dizziness wears off so I can drive home. I'm still a little dizzy though.

Headache: I take a short nap and usually it eliminates the pain.
Migraine: I nap about 4 hours and wake up with a throbbing head again. I take two more Butalbital with dinner, along with ginger tea and my ice bag. This the the first time I've taken the maximum daily dose, and that makes me nervous.

Right now, I'm at the dizzy stage again. It's pretty much a guarantee that the head pain will start again soon, but by that time I plan to be in bed asleep for the night. I'm praying that the migraine doesn't last long and I wake up with a pain-free head, but my migraines usually last at least two days.

I'm hoping my doctors can help next week. My Ketolorac has expired (and I'm supposed to limit it to twice a month anyway), so for now my Butalbital is my strongest med and it's failing me. I'm starting to feel desperate, and that's never a good feeling. But I know a lot of you can relate, sadly.

Note: I'm not trying to belittle headaches in any way. They suck, too; especially the chronic ones, which wear you down over time.

Dog Sitting

Colt

I've been begging my husband for a dog, but we live in a condo and that's his excuse to say no. Plenty of our neighbors have dogs and we have a Greenway nearby, but...still no. Lucky for me, he LOOOOVES my sister and bro-in-law's dog, Colt. So much, in fact, that agrees to dogsit. At first we had to stay at their house because he didn't want a dog here, but the last two times Colt *was allowed* to stay here. Starting today, we're watching him for about 1 1/2 weeks!

This isn't news, but pets can be good for your health. We already went on a 45 minute walk today, 10 minutes of that running without stopping (huge for me). He's a sweet dog who stays calm unless you want to play, and then he gets all wild and energetic. I don't think I've ever met a dog who listens as well as he does, and I'm not just saying that because he's my "nephew." Maybe one day (when we go back to a house) I'll have a dog of my own.

Not related to Colt, but I haven't done a health update in a while, partly because my health has been weird. Of course I'm still having the headaches and a lot more migraines than I'd like. Luckily Aleve (for headaches) and Butalbital (for migraines) still help, as long as I limit my use. Which means the majority of the time I suffer through the head pain (it's not as hard to do since I'm not working full time anymore, but it still sucks). The thought of the meds not working in the future absolutely terrifies me, to the point of tears sometimes. I hate relying on drugs like that, but at the same time I'm thankful for them.

But here's the weird part (dudes will probably want to stop reading at this point). Twice over the last few months I had bad cramping incidences that weren't during my period. The first one woke me up at night and I went to the computer to research it but I couldn't figure out what it was. I finally was able to go to sleep once I got my heating pad. The second incident was a few weeks ago. It felt like I had menstrual cramps and they kept getting worse and worse over a few days until finally it was almost like I was in labor; it would come and go in waves and I'd almost have trouble breathing the pain was so intense. I made an appointment with my gyno because I was due for an annual visit, but the pain went away that day, until she did the exam and felt my ovaries, that is. Ouch. She said the left one, which hurt the worst, felt weird (I can't remember the exact word she used). She wouldn't do a consultation with me about the issue in addition to the exam, I guess because my insurance would want them to be two different appointments - lame, I know - so I didn't find out anything else.

When the pain went away, I assumed I had an ovarian cyst that ruptured. But then when I started my period yesterday the cramps were way worse than normal, and "normal" is bad for me. Last night I read about endometriosis, one of the conditions that came up in my earlier research, but reading the description and diagnosis options made me so nauseous my face turned green (seriously), so I had to stop.

Maybe all this is related to the progesterone I'm taking, who knows. I'll probably schedule an appointment with my gyno. In the meantime, if you think you might know what's wrong with me, I'm all ears. :)

News: Migraine Genes Discovered

My pastor sent me the link to a newswire article, "Scientists find genes linked to migraines." An international study was published in a British publication, Nature Genetics. As the article states, "The influence of these genes is probably not large enough to be immediately used as a diagnostic tool. But the result is an advancement of the understanding of migraine biology."

"Advancement" and "migraine" in the same sentence? Works for me! I hope something will come of this study.

Speaking of my pastor, I've requested a fragrance-free policy, or at least a fragrance-free zone, for my church. She's completely on board and ran it by the senior pastor and church council. I've been having bad migraines after church, and although it could be the lighting, I'm almost certain it's the perfume that some people seem to bathe in. I did some research and turns out a lot of churches are adopting similar policies, so I sent the pastor some examples of ways we can implement it in our church. I'll keep you posted on how things go!

My Interview with Serene Branson

Today I had the privilege of interviewing Serene Branson, an Emmy Award-winning journalist for CBS. If her name doesn’t ring a bell, perhaps this video will. Serene was covering the Grammy Awards in February when she suffered a complex migraine, which caused her to jumble her speech on live television.

Serene is now teaming up with the National Headache Foundation (NHF) to raise awareness of migraines through the “More Than Just a Headache” campaign.

Here’s some highlights of our conversation:

Me: When did your migraines begin?
Serene: Probably in college/post college I started to get really bad headaches but I thought they were a stress of the job kind of thing - long hours, etc. - and I brushed them off. Looking back I realize they were probably migraines, but they were nothing like what I experienced in February. That was the perfect storm; all the triggers aligned.

Do you have any known migraine triggers?
For me, caffeine can be a trigger, and stress.

I know you’ve been asked a million times what was going through your head when you were on camera at the Grammys, but did “migraine” ever cross your mind?
I had no idea it could have been a migraine until my mother, who gets migraines, brought it up that next day. I was thinking it was much more serious because in my mind migraine was just a bad headache. My symptoms, including numbness on one side, were like stroke symptoms and migraine never entered my mind until my mother and doctors brought it up. I saw a variety of specialists and when my brain scan came back normal, that’s what they came up with. My mother hadn’t taken time before to talk to me about her migraines because it wasn’t considered a “serious disease.” She had them sporadically in her 30s and 40s but she has only had one since then, and that was after all this (news coverage from the February incident) happened to me.

Have you had any similar incidences since then?
Not similar, no. I’ve really been trying to watch the triggers, and I monitor my symptoms. I see a neurologist and have found a medication* that works for me. I also exercise because it helps relieve stress.

Have you had to change your workflow any because of your migraines?
I haven’t; I’ve just been very mindful about how many hours I’m working in the day and I’m trying not to say yes to everything - which can be intimidating because you want to be the hard worker and go getter who takes on everything, but you can’t.

Do people on the street recognize you from the video? If so, what reactions do you get?
Some people definitely have and it’s honestly been a very positive reaction. So many people came up to me and said “We were praying for you” and “Thank you for having the courage to speak about it.” This motivated me to open my personal health file and talk about it. People are hungry for more information, support, treatment and research. The NHF has recognized this need. It’s really important that they’re trying to raise awareness of migraines to recognize that they have an impact not just on individuals but family/children and the workplace. A lot of productivity is lost from migraines and if people take it more seriously they might be willing to talk. Had I known I was having a migraine I could have said I wasn’t feeling well. Not that we should use migraines as a crutch, but we should recognize it as a disease. I did more research on migraines recently and realized it’s one of the top five most disabling conditions in the world! The more education and support people can give to migraine sufferers the better. Letting people know it is a disease and a disabling disease is important. You are not alone, you have nothing to be ashamed about; over 30 million people suffer from migraines in the U.S.

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*I asked Serene what the medication was but told her she didn’t have to say, since different treatments work for different people. She preferred not to say.

Serene is doing additional interviews this week to share her story and help raise awareness. I’m thankful that she and the NHF are doing this. It’s good to be understood.

Door to the Cure Sweepstakes

I know a lot of other migraine bloggers have already blogged about this, so consider it a friendly reminder:

The nonprofit Migraine Research Foundation has an online sweepstakes going on now through June 9. All proceeds will go directly to the foundation's research program investigating the causes and better treatments of migraine disease, according to the MRF's press release.

To enter the sweepstakes, visit www.migraineresearchfoundation.org/sweepstakes. I bought a ticket for the Puma gift card. :)

I admit, I typically don't give money to migraine organizations because I spend enough money on my own treatments, and plus I plan on donating a fortune to these types of organizations when I get rid of my migraines and get rich (ha! to both). But $10 is not much, and every little bit helps. By the way, upon my request, the MRF sent me documents to show that they are a valid foundation.

Paintings

I'm FINALLY able to cross something off my list that has been on it a few months now:

We have wall art! :) I used an idea I found online, chose my own colors, and then my dear husband designed it in CAD so I could trace the lines and paint it. Painting is therapeutic for me; I love it! Yay for art!!!

Migraine Warrior Classmates

During the spring semester, I became an instant friend with a girl who was in two of my classes. We just clicked, and it didn't take us long to discover that we both suffered from migraines. She's unfortunate enough to have "classic" migraines where she has vomiting and can't function when she has them...it's so bad that if her husband's working when she gets one he either has to leave work or her in-laws have to come and take care of her kids. Luckily, like me, she didn't have to miss a lot of class. She's putting up a good fight though; in fact, during the semester she tried Botox (at first her insurance refused to cover it, but then her neurologist reworded the request and they agreed to cover it, but I think she had to pay the deductible). It may have helped a little at first but she's still having migraines.

In one of our classes, we had a group project and of all people got teamed up with another migraine sufferer! This classmate is seeing a former neurologist of mine and I think I convinced her to fire him because he was changing her meds a LOT during the semester and she had really bad fatigue and was not happy with him. Sounds like he hasn't changed - he shoves drugs down your throat and doesn't communicate with you. She ended up missing class quite a bit, but I think she was able to stay in the class because it was for medical reasons and thank goodness the instructor and college seemed to be supportive.

I know I'm rambling, but isn't it neat how you come across fellow migraine warriors (not just online but also in person) and you just "click" and start comparing treatments and stories? Yes it's a little depressing because we're all pretty much in the same place as far as not finding treatment that works, but it was nice to go through the semester with these girls fighting alongside with me!

GelStat Migraine

My busy semester is OVER! I'm so thankful that while taking 16 credit hours, working 10 hours a week and having chronic headaches and occasional migraines, I managed to earn a 3.8 GPA and I only missed ONE class due to a migraine! I really feel that this is God's plan for me and He's giving me the strength to do it.

Thank you, readers and friends, for being patient with my lack of blog posts. This summer I'll be working more but I only have one class, so I hope to be more active here. And my husband finally fixed my browser issues so I can now leave comments on your blogs again. :)

During the semester, my headaches have remained the same, but I haven't given up the fight. Here's what I'm trying:

• Butterbur: I tried this about 3 months and gave up because I noticed no improvements, and it was upsetting my stomach.
• TMJ mouth guard: I'm still seeing a TMJ specialist every few months, and we gradually decreased the time I'm required to wear my mouth guard. Now I only need to have it in at night (8-10 hrs). I don't think it's impacted my headaches but I do have a lot less jaw pain.
• Therapy: I'm still seeing a therapist about once every three weeks for stress, anxiety and pain management.
• GelStat Migraine: A friend of mine suggested it and I noticed they have a free trial (I just had to pay $3.99 shipping), so I figured I'd give it a whirl. The first dose I tried helped, but the second didn't, probably because I didn't catch the headache soon enough. Have any of you had success with GelStat?

Empty dose with my hand for size comparison. It actually tasted decent.







• Ice pack: My trusty ice pack has seen better days, so I got a new one. This one is from The Container Store. When I saw it online I assumed it would fit on my entire head, but when I went to buy it I realized it was more like the size of my hand. Does anyone know where you can get a head-size ice bag? 

Cute Retro Ice Bag

• Progesterone: My gyno upped my dose of progesterone (bioidentical hormone) and switched from the pill to cream, which I requested because I thought it might work better. It looks intimidating, but I don't inject it anywhere; instead, I put the specified dose on a tissue and rub it on my inner thighs (one of the many safe spots). The higher dose makes me really tired, but I only use it day 15 to the end of each cycle. It's still early to tell if it's helping.

Progesterone cream

• Drugs: The only drugs I take are Aleve for really bad headaches and Butalbital (Fioricet) for migraines. I'm trying to take as few meds as possible and prevent headaches through a healthy diet and exercise. I've always had this ambition, but now that I've gone through most of the standard migraine meds, I feel a renewed desire to get more serious about exercising. I hope it lasts!

Happy Easter!

1 Corinthians 15:57-58 (New Living Translation)

^"But thank God! He gives us victory over sin and death through our Lord Jesus Christ. So, my dear brothers and sisters, be strong and immovable. Always work enthusiastically for the Lord, for you know that nothing you do for the Lord is ever useless."

(my church, Millbrook United Methodist Church, Raleigh, NC)