Tuesday, July 28, 2009

Internal Medicine Doctor

Gotta keep this one brief since I'm on my lunch break. Quick update...

My mom who is a nurse wanted me to try a different avenue other than neurologists since I've seen five with no luck. She recommended seeing an internal medicine doctor or "internist" (not to be confused with "intern"). They're like primary physicians but more in-depth and according to the American College of Physicians (see the link), "they are specially trained to solve puzzling diagnostic problems and can handle severe chronic illnesses and situations where several different illnesses may strike at the same time."

The bad news is, of my migraine friends on Twitter, only one has had luck with an internal medicine doctor. The good news is, someone HAS had luck with one. My desire has always been to find the cause of my headaches to treat them, and I feel that an internist might be the way to go since they cover such a broad spectrum.

Another reason for seeing an internist is I want to get off Lexapro and Lyrica which do not work and I need a doctor to do this. My neurologist will not be happy with me, but I haven't seen her since April and her new facility is still trying to get in United Healthcare's network (my insurance), so there's no telling when I'll be able to see her next.

My appointment is in one week. Wish me luck!

P.S. - When I spoke to appointment scheduler and asked if they handled chronic headaches, she said they'd see me and then refer me to a specialist, but I said been there done that - I want to be treated by an internal medicine doc and find the cause, and then she had me speak to the triage nurse who said she'd have to schedule the appointment first to see what they could do.

Monday, July 20, 2009

Overwhelmed

I'm overwhelmed with - everything.

I'm in a hole at work and I can't dig out. I think it's because all I've had lately is writing assignment after writing assignment, and I have major trouble concentrating which I blame Lexapro and/or Lyrica for. This is causing me lots of stress.

Plus I've been having trouble sleeping which throws off everything.

Also my headaches seem to be out of control. At least I haven't had any really bad migraines lately, since I've said goodbye to hormonal birth control. But I still have almost daily headaches, and some get so bad that medicine doesn't have an impact on them.

But I always try to end on a positive note, so here are some things I'm grateful for:

* God. He fills me with hope and gives me strength to deal with my pain.

* My acupuncturist. Although the six sessions I've had so far don't seem to be helping, I still have hope. Some of my fellow blog and Twitter migraine sufferers have had success with acupuncture and say it takes a while. Today my acupuncturist told me to show up at 2:00 next week, which is when community acupuncture ends, because he wants me to do a private session where I can lay down - for the $20 community acupuncture cost!!! :) I'm excited to try another approach.

* My job. Even though it's stressful, my boss is flexible with my doctor's appointments. Plus, I'm blessed to have a job and health insurance.

* Family. They are all supportive and understanding. Plus my husband and I finally booked a trip to Seattle for next month. Can't wait!

* "No." I've finally been able to say no to people (I don't have a choice really) and it feels great. Having a more open schedule and taking a break from things is wonderful...or at least it will be once work calms down.

Remember that no matter what you're going through, it always helps to count your blessings.

Sunday, July 12, 2009

One Month Gluten Free

First of all, an inspiring read on migraines and going gluten free. This blog post is by the person I met on Twitter who inspired me to try a gluten-free diet. She has celiac disease, and when she cut gluten from her diet, her migraines went away. While I do not have celiac disease (according to a blood test) I'm still thinking there could be a chance I have some level of gluten intolerance, which is why I'm trying a gluten-free diet. Here's her blog post, My Migraine Story - A Gluten Free Miracle.

Second, a VERY helpful read if you're planning to start a gluten-free diet, How to Start Living Gluten-Free.

And to add my own experience...I started a little over a month ago by eating up all my food and giving away extra flour, Bisquick, Kashi bars, etc. Then I went completely gluten free immediately by eating mostly unseasoned and unbreaded fruits, vegetables, meat, rice and potatoes. Throughout the past month I've tried gluten-free foods from Whole Foods, Kroger, Harris Teeter and Earthfare. They all have pretty good selections, and I was happy to learn that Kroger, which is my primary grocery store, labels gluten-free items (such as cookies or cereal that would typically contain gluten). When I shop I carry a list of ingredients that contain gluten so I can check foods I'm unsure about.

For breakfast I have gluten-free breakfast bars or fruit, for lunch gluten-free frozen dinners or a salad, and for dinner I'll usually have a veggie, rice and meat. I've also tried GF pasta (made from rice or other grains), quinoa (pronounced KEEN-wah), which is a healthy herb/grain that you can eat like rice or use in recipes like meatloaf, and Tamari - gluten-free soy sauce (yes, soy sauce contains wheat). For snacks, I have corn chips or gluten-free cookies. Eating out has not been too difficult. I'm used to having to check to see if restaurants have MSG-free options since it makes me sick, so now I check online menus for gluten-free options as well. Many places like PF Changs, Chili's, and Outback Steakhouse even have special gluten-free menus online. I've also tried a kitchen in Raleigh that lets you pick up meals that are guaranteed gluten free. They have a killer zucchini bread! And just yesterday I bought a gluten-free chocolate cupcake from a bakery selling at the local Farmer's Market that was out of this world! :)

I went an entire month without cheating, although I wasn't 100% strict either. I did check my pills and lip gloss, but I don't worry about lotion, shampoo, makeup, and cross-contamination issues. Since I don't have celiac disease, I'm guessing I don't need to be super-sensitive. BUT yesterday, I could not resist a bite of wedding cake and the crepes station at a wedding. I wanted to see if I'd get an instead headache. However, I already had a headache before the wedding, and although it did get worse, I think it's because of the two strawberry mojitos I drank!!!

So the big question is have my headaches improved? In June I had 26 headaches. Today is July 12 and I've had nine headaches so far. But the three non-headache days were in a row, which is unusual.

Of course if you read my blog, you know that I'm also doing acupuncture, Chinese herbs, and some different types of vitamins. Any of those might be helping.

For now, I'm going to stick to my gluten-free diet for five more months, or at least that's my goal.

P.S. Thanks for all the gfree people on Twitter who have been happy to answer questions and who post helpful tips!!!

Thursday, July 2, 2009

Acupuncture Update

I've had four acupuncture visits so far; one per week. Unfortunately I'm still having headaches almost every day. I had a total of 26 headaches in June. A friend told me today that she saw a Duke study on acupuncture and headaches, and it took about 12 sessions for improvement, so I've decided to give it that many. Here's an article on acupuncture - it explains how it works, which I wonder each time I go! Thanks to @ManageMigraines on Twitter for the link.

In addition to the community acupuncture, I've been doing what I guess is acupressure where I tilt my head to the side and use that side's hand to push on the opposite side's area between my neck and shoulders, if that makes sense. When I push it, the pain radiates to my head. I'm supposed to push it until the knot that's there breaks up.


Also, as you can see from the picture, I'm on lots of fun non-big-pharma pills. So in addition to the Lyrica and Lexapro that my neuro put me on and I'm going to get off as soon as I see her next, I take the following: women's multi-vitamin, iron (not headache-related), magnesium, fish oil/omega-3, vitamin B complex, Chinese herbal migraine pills which are the black beads in the picture (10 twice a day) and 800 mg Ibuprofen or 2 Aleves when I have bad headaches.

My gluten-free diet is going very well. After eliminating food I couldn't eat from my kitchen, I printed gluten-free menus from restaurants that have them, printed a list of ingredients to avoid, and visited several different grocery stores to see their gluten-free foods selection. I'll blog more about it soon.

Hope all my American readers have a wonderful Independence Day, and I hope all my readers are headache-free for the weekend! :)

Tuesday, June 16, 2009

Is there a correlation between car accidents and migraines?

Since my last post, I've had acupuncture visits #2 and #3.

Visit #2 was interesting...and painful. I told the acupuncturists (husband-wife team) that I had a headache, and they put needles in my hand and feet like normal. Then they asked if my headache was going away, and I said no, so they gave it more time and then asked again. I thought to myself, are they really going to keep me here until my headache goes away? Because a few thin needles aren't going to make that happen. I told them I still had a headache, so they took out the needles and said they were going to do a stronger treatment. They put about 15 needles in me - on my feet, legs, hands and head - the sides above my ears, temples, and one in between my eyes right above my nose.

So what does this have to do with car accidents? The husband of the husband-wife team felt my neck and said "oh my" etc. He asked if I'd ever been in a car accident, and I told him yes a bad one when I was a kid - like in 5th or 6th grade - but I wasn't hurt. He said, are you sure? Then he started doing an acupressure/massage type thing that HURT. I could feel it up through my head, and my headache got way worse when he pushed on my neck. Then he lifted my arm and pushed down on a spot between my neck and shoulders and did the same for both sides. It gave me a sharp intense pain. Finally, he took out the needles and put a liquid on my neck that felt and smelled like IcyHot.

He asked how my headache was. IT WAS GONE. I couldn't believe it. Unfortunately, it only stayed gone for 30 minutes; then I got a migraine and had to take drugs.

I'll write more about my acupuncture appointments later, but I'm wondering, is there something to his car accident theory? It was so long ago, and I didn't have a single injury except for a seatbelt burn on my arm, but the car was hit so hard it spun a few times. And I've been in two more accidents within the last few years, although I already had migraines by that point.




I decided to do a Twitter poll to see if other migraine sufferers had been in accidents. A couple of people pointed out that the poll, which is above (and the link is below), wasn't specific enough. It didn't ask, for those who said yes, what happened first - the accident or the migraines. That's a good point and a weakness in the survey; another weakness is the number of votes - 17, which isn't much for a poll. That said, I still find it interesting that the majority of migraine sufferers have had a car accident.

As much as I researched, I could not find a study on the subject. Sure, some people get headaches directly after an accident, but what about years later? And if there is a correlation, what can be done? I personally have seen a chiropractor and physical therapist for my neck/headaches, with no success.

I'm sorry this post leaves so many questions unanswered, but I'd like to hear what other headache sufferers have to say. Do you think there's a correlation between headaches/migraines and past car accidents, and can anything be done about it?

Link

Thursday, June 11, 2009

Sticking to Acupuncture


I actually don't know if I'm sticking to acupuncture, I just liked the play on words. :) Anyway, I did finally try acupuncture for the first time this week, thanks entirely to @stonetree on Twitter, who told me about community acupuncture. As you can probably guess, community acupuncture takes place in a room with chairs and anyone can walk in and have acupuncture. Because you're with other people instead of a private room, they charge a cheaper rate. I'm able to get acupuncture for $20 a session! The place I found does this once a week. The bad news is I'm in a decent-size city, and I only found one place that offers this; so if you are in a small town you may need to drive to the nearest city to do community acupuncture.

Everyone's been asking me what it's like, but it's pretty simple. The acupuncturist sticks needles in you. I'll try to be a little more descriptive though. I had about eight-ten needles in me - on my feet, the insides of my legs below my knees, elbow area, and wrists and hands. It didn't hurt until the lady pressed down on the needles after inserting them; that felt like when you push on a bruise. Also, I didn't move much because it would hurt if I moved the wrong way. The lady said that the 800mg Ibuprofen I took that morning for a headache (what else) may have masked the sensation.

The needles were in me for about 45 minutes. Someone was there when I first got there, but she was just finishing up, so I had the room to myself. The acupuncturists (a husband and wife team) did talk to me for a little while and they told me the main reason people go to their clinic is for headaches and back pain. The one acupuncturist said I WILL see results after about 4-6 visits. We shall see.

Also, they told me to take fish oil and vitamin B, so I'll be looking into that.

And one more thing - if you try this, check to make sure your acupunturist is certified!

Saturday, June 6, 2009

Going Gluten Free


Lately I've been VERY optomistic about my migraines/headaches, and for good reason. It all started when I was on Twitter. I stumbled across @GFillustrator and found out that her migraines improved when she stopped eating gluten. I decided to get tested for Celiac Disease, since I have some of the symptoms. Well, turns out that I do not have it, but after all the research I've done, I've decided to try going gluten free for a while anyway, to see it helps my head and stomach.

Some of you may have already tried this or may be currently gluten free - if so, please share your experiences. If you want to try going gluten free, I'm going to chronicle my experiences on here, so I invite you to try it with me! I'll still post other things as well (teaser - I'm trying acupuncture for the first time Monday!).

The first step to going gluten free is research. Thank goodness there are lots of resources online. Here's just a handful:

* Celiac.com: this post has a list of unsafe ingredients

* What you can and can't eat, and meal suggestions: here

* Excellent headache/migraine blog with a post on gluten: here and be sure to read the comments!

* Blog that lists restaurants with gluten free items/menus: Hold the Gluten

* Blog post - You've Got Celiac, Now What?: Celiac Bites

* It's important to still get essential nutrients when you're trying a gluten-free diet, so check this out.

* Talk to friends as well. My friend told me about a local place in Raleigh, NC that will put together gluten-free meals for you to pick up if you don't have time to cook but don't know where to get gfree food either: Rosie's Plate. You may have one similar in your area.

Next step is emptying out the food in my kitchen and then adding what I CAN eat.

*6-8-09 update* This week is National Headache Awareness Week, which means there will be TONS of headache news stories, blog posts, etc. Stay plugged in this week and you might learn something new! I'm hoping the news stories won't be the same old stuff that everyone knows already. Either way though, awareness is good!!!

Monday, June 1, 2009

What's the best pharmacy poll results, and anniversary wishes...

CVS and Wal-Mart tied in my best pharmacy poll...but only 15 people voted, so I'm going to say the results were inconclusive. I think it's a tough call - all pharmacies have positive and negative qualities, and it depends on factors like where you live; for example, the CVS where I used to live sucked because it was the only pharmacy in the area and the lines were always long. The one I go to now though hardly ever has a line (which is odd because it's right beside a hospital). I like the bucks I "earn" to spend at CVS (on nonprescription items, of course), but I sometimes wonder if Wally World would be cheaper, or a grocery store pharmacy more convenient.

Speaking of pharmacies, ever wonder if the pharmacy tech at the window thinks you've got issues? I mean, I've tried a LOT of medications, and meds for migraines can be meds that treat high blood pressure, seizures, depression, bed-wetting and schizophrenia. No offense to anyone who has these issues, but sometimes I wonder what they think of me. A college friend of my husband's is a pharmacist and his fiancee is a patient - it's how they met. They joke that he decided to marry her, even after knowing what she was taking.

Glad my husband decided to marry me, and stay married to me, knowing about my migraine/headache issues. And knowing that those issues bring about a whole other set of issues. Happy five years, honey! (May 29, 2009)

Tuesday, May 26, 2009

News Item on Levadex



I don't think I've written about drugs in clinical trials, but I received an e-mail from the National Headache Foundation announcing that Levadex had successful Phase 3 trials (see this NY Times article), and this sounded different and intrigued me. In fact, I actually listened to a recording of the Webcast.

Levadex is a non-triptan abortive treatment for migraines. It's a new inhaled version of dihydroergotamine (DHE), which apparently is administered as an injection at the ER and can be taken as a prescription nasal spray called Migranal. Oddly, I'd never heard of Migranal. Has anyone tried it?

MAP Pharmaceuticals still needs to do another long-term follow-up study and other trials that will take about a year, but it sounds promising!

Sunday, May 17, 2009

NO MORE HORMONAL BIRTH CONTROL

Background: I've been on some form of hormonal birth control since I was 17 or so, around the same time I started getting headaches. I was on it for cramps and because I had slightly irregular periods and heavy flow (which I'm going to have again soon, woohoo!). I started with different kinds of The Pill, and then Ortho Evra Patch, then nothing for a while because I suspected it was giving me headaches, but after maybe six months I didn't notice a difference, so then I went on The Pill without breaks for a period, which my neurologist suggested. Of course then I had break-through bleeding and bad headaches. Then my gyno talked me into getting a Mirena IUD for maybe two years, which you can read about here and most recently I had the Nuva Ring, which you can read about here.

So last week I took out my Nuva Ring (without my neurologist's permission; please don't get the impression that I'm saying this is right because it's NOT; I just got fed up and made a quick decision on my own). After a few days I got a light period and I've had some nausea and diarrhea which I'm guessing are withdrawal symptoms. I've still had headaches but I'm hoping they'll improve.

I've also been exhausted. I slept all day today and even missed church, which makes me sad. But God knows how I feel, and he understands. Plus, as my mom told me - it IS a "day of rest"! I haven't worked out in three weeks so I'm sure that's not helping.

I have a new theory, which I'll blog about soon, but for now I just wanted to put in writing that I'm never ever going on hormonal birth control again. My husband (who supports this decision) says I'm a broken record because I've said this before, but I mean it this time. My body does not like those crappy synthetic hormones, and I'm convinced that my headaches will improve as my cycle gets back to normal.

And no, I'm not planning on having kids any time soon, no offense, future kiddos.